Living with a blood clot disorder means taking a few extra steps to protect your health, but most people go on to live full, active lives. With the right diagnosis, treatment, and daily habits, you can lower your risk of a new clot and feel more in control. Our hematology team at Lindenberg Cancer & Hematology Center in Marlton, NJ helps patients manage clotting disorders every day.
Below, we explain what a blood clot disorder is, how it is treated, and what you can do at home to stay safe.
What Is a Blood Clot Disorder?
Normally, your blood clots to stop bleeding after an injury. Then the clot breaks down once the injury heals. A blood clot disorder, also called a clotting disorder or thrombophilia, makes your blood more likely to form clots when it should not. These clots can block blood flow in a vein or artery.
The most common problems are deep vein thrombosis (DVT), a clot in a deep vein, usually in the leg, and pulmonary embolism (PE), a clot that travels to the lungs. Together, doctors call these venous thromboembolism. The CDC notes that blood clots are serious and often underdiagnosed, but many are preventable.
Common Types of Blood Clot Disorders
Some clotting disorders are inherited. Others develop later in life. The most common include:
- Factor V Leiden. The most common inherited clotting disorder. It makes a clotting protein harder for the body to switch off.
- Prothrombin gene mutation. An inherited change that causes the body to make too much of a clotting protein.
- Protein C, protein S, or antithrombin deficiency. Rare inherited conditions where the body lacks natural clot blockers.
- Antiphospholipid syndrome. An autoimmune condition where the immune system makes antibodies that raise clot risk.
Cancer and cancer treatment, surgery, pregnancy, long periods of sitting, and some hormone medicines can also raise clot risk. For a deeper look, read our patient’s guide to blood clot disorders and our overview of common blood clot disorders and possible treatments.
Signs of a Blood Clot to Watch For
When you are living with a blood clot disorder, knowing the warning signs is one of the most important things you can do.
Signs of a clot in the leg or arm (DVT)
- Swelling in one leg or arm
- Pain or tenderness, often in the calf
- Skin that feels warm or looks red or discolored
Signs of a clot in the lungs (PE)
- Sudden shortness of breath
- Chest pain that gets worse when you breathe in
- Fast heartbeat, dizziness, or coughing up blood
A pulmonary embolism is a medical emergency. If you have these symptoms, call 911 right away.
How Blood Clot Disorders Are Diagnosed
A hematologist, a doctor who specializes in blood disorders, usually leads testing. Your doctor may order an ultrasound or CT scan to look for a clot. Blood tests can check for inherited conditions like Factor V Leiden and for antiphospholipid antibodies. Your personal and family history also matter, so share any past clots in your family.
Being sent to a hematologist can feel worrying, but it is a normal step. Our article on whether it is serious to be referred to a hematologist explains what to expect.
Treatment Options for Blood Clot Disorders
The main treatment is anticoagulant medicine, often called blood thinners. These medicines do not dissolve existing clots. Instead, they stop clots from growing and lower the chance of new ones while your body breaks down the clot. Common options include:
- Direct oral anticoagulants (DOACs), such as apixaban or rivaroxaban, which usually do not need routine blood tests
- Warfarin, which needs regular INR blood tests to keep the dose in a safe range
- Heparin injections, which are often used in the hospital, during pregnancy, or for patients with cancer
Some people take blood thinners for a few months after a clot. Others with an inherited disorder or repeat clots may need them long term. Your hematologist will decide what is right for you. The National Heart, Lung, and Blood Institute offers more background on treatment and prevention.
Daily Tips for Living With a Blood Clot Disorder
Small habits make a big difference. Here are practical ways to stay safe and feel your best.
Take your medicine exactly as prescribed
Take blood thinners at the same time every day. Do not skip doses or stop on your own. If you miss a dose, call your care team for advice.
Watch for signs of bleeding
Blood thinners raise your risk of bleeding. Call your doctor if you notice black or bloody stools, blood in your urine, nosebleeds that will not stop, or unusual bruising. Seek emergency care for a severe headache or a serious fall.
Keep moving
Regular walking helps blood flow. On long car rides or flights, get up and move every hour or two. Flex your ankles and drink plenty of water. Wear compression stockings if your doctor recommends them.
Be careful with food and supplements
If you take warfarin, keep your vitamin K intake steady. Leafy greens are fine, but eat about the same amount each week. Ask before starting any new supplement, herbal product, or pain reliever, since some can raise bleeding risk.
Tell every provider
Let your dentist, surgeon, and pharmacist know you have a clotting disorder and take a blood thinner. Many patients also carry a wallet card or wear a medical ID bracelet.
Talk about hormones and pregnancy
Estrogen-based birth control and hormone therapy can raise clot risk. If you are planning a pregnancy, talk with your hematologist early so you can plan safe care.
Support your overall health
Not smoking, staying at a healthy weight, and staying active all lower clot risk. Living with a chronic condition can also be stressful, so reach out to your care team if you feel anxious or overwhelmed.
Why See a Hematologist in Marlton, NJ?
A clotting disorder is a long-term condition, so it helps to have a specialist close to home. Our hematologist in Marlton, NJ diagnoses clotting disorders, manages blood thinners, and helps patients plan for surgery, travel, and pregnancy. We care for patients from Marlton, Cherry Hill, Voorhees, Mount Laurel, Medford, and across Burlington and Camden counties.
Clotting disorders are just one part of what we treat. Learn more about the blood disorders treated by a hematologist and common blood disorders. New patients can find forms and insurance details on our patient information page.
Frequently Asked Questions
Can you live a normal life with a blood clot disorder?
Yes. Most people with a blood clot disorder live full, active lives. Taking medicine as prescribed, staying active, and knowing the warning signs of a clot all help lower your risk.
Does Factor V Leiden cause fatigue?
Factor V Leiden itself does not usually cause symptoms like fatigue. Tiredness may come from a past clot, a related condition, a medicine, or something unrelated. Talk with your hematologist if you feel unusually tired so they can find the cause.
How long will I need to take blood thinners?
It depends on what caused the clot and whether you have an inherited disorder. Some people need blood thinners for three to six months. Others with repeat clots or certain disorders take them long term.
What are the most common blood clotting disorders?
The most common inherited clotting disorders are Factor V Leiden and the prothrombin gene mutation. Antiphospholipid syndrome is the most common acquired clotting disorder.
Can I travel if I have a blood clot disorder?
Yes, with some planning. On long trips, get up and walk every hour or two, stay hydrated, and wear compression stockings if your doctor recommends them. Talk with your hematologist before a long flight.
When should I go to the emergency room for a blood clot?
Call 911 for sudden shortness of breath, chest pain, coughing up blood, or a severe headache. These can be signs of a clot in the lungs or serious bleeding.
Schedule an Appointment With a Hematologist in Marlton
If you have been diagnosed with a blood clot disorder or have a family history of clots, our team can help you build a plan to stay safe. Call Lindenberg Cancer & Hematology Center at 856-890-7200 or request an appointment online. Our office is located at 773 East Route 70, Suite E-125, Marlton, NJ 08053.
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